WebThe Cure GM1 Foundation is dedicated to directly funding research for a cure for GM1 gangliosidosis – a lysosomal storage disease that attacks the brain and spinal cord. ... (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community ... WebThe Cure & Action for Tay-Sachs (CATS) Foundation Jun 2014 Children Runner Runner Virgin Money Giving ... Children Mini-marathon for Tay …
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WebThe Cure Tay-Sachs Foundation, an IRS-approved 501(c)(3) non-profit entitiy. As it states on its web site: "The Cure Tay-Sachs Foundation is dedicated to funding the ongoing research needed to find treatments and … WebMar 23, 2010 · To find out more about Tay-Sachs and to make a donation to the Cure Tay-Sachs Foundation, go to www.curetay-sachs.org or call 216-812-5855. Local man lives with late-onset Tay-Sachs. shannon simmons twitter
National Tay-Sachs & Allied Diseases Association - Home
WebTay-Sachs Disease. Tay-Sachs disease is a genetic condition. Tay-Sachs is caused by a baby receiving two defective HEXA genes, one from each parent. Tay-Sachs disease symptoms include failing to meet motor milestones, such as sitting and standing. Babies born with Tay-Sachs often die at a young age. Genetic testing can help you make family ... WebJan 22, 2024 · 14 The Cure & Action for Tay-Sachs Foundation, 94 Milborough Crescent, Lee, London, SE12 0RW, UK. 15 International Niemann-Pick Disease Alliance, Vermont House, Concord, Washington, Tyne and Wear, NE37 2SQ, UK. 16 National Tay-Sachs and Allied Disease Foundation, 2001 Beacon Street, Suite 204, Boston, MA, 02135, USA. WebThe Andersons started the A.J. Anderson Foundation after their son, Drew, was diagnosed with Tay-Sachs disease. At this stage there is no cure for Tay-Sachs, but there is treatment which is mostly supportive and directed to providing adequate nutrition and hydration, managing infectious disease, protecting the airway, and controlling seizures. shannon simmons md